By Thomas Ultican / Tultican
An intricately connected network of organizations is controlling dyslexia discourse in the US and taking over dyslexia screening and remediation. Thirty-nine states now have adopted dyslexia laws. Most of these laws contain the International Dyslexia association’s (IDA) remediation recommendation of being “multisensory, systematic, and structured.” Researchers Jo Worthy et al state, “This approach is not well supported by research, but it is officially sanctioned through legislation in many states and has had a profound effect on policy and practice.”
IDA, the Academic Language Therapy Association (ALTA), and the International Multisensory Language Education Council (IMSLEC) are three big players. IMSLEC started as an IDA committee, and ALTA certifies dyslexia specialists in the multisensory language approach, which is consistent with IDA’s Knowledge and Practice standards for educators. IDA began certifying teachers in 2016, in addition to accrediting dyslexia teacher training programs. The websites of these organizations link to each other and to Decoding Dyslexia, a network of parent organizations with chapters in every state. The mission statements and lobbying materials used by all Decoding Dyslexia sites employ language from IMSLEC and IDA.
Using Parents and Students
Rachael Gabriel is Associate Professor of Literacy Education at the University of Connecticut. When large numbers of people showed up at legislative hearings in Connecticut, she became interested in their unusual engagement and strangely similar comments. Gabriel used critical discursive psychology, positioning theory, and narrative policy analysis to analyze the dyslexia law advocacy. She says, “I argue that this narrative can be understood as a conversion narrative, which drives a privatization agenda in which public schools become mandated consumers for a growing dyslexia industry, and in which the nature of instruction for students with reading difficulties is narrowly prescribed.”
Gabriel shares several extracts from the oral and written testimonies given at the legislative session on special education. The first extract is from a student who introduced himself as a 10-year-old who was “here to speak in support of Bill RHB 5562, An Act Concerning Special Education to get dyslexia recognized in the State of Connecticut.”
“I have dyslexia. Reading and math are really hard for me. I’ve had too many teachers that don’t understand how to teach me. Finally, this year I went to Lindamood Bell training and reading is getting easier.”
This is a typical message indicating public school teachers do not know how to teach students with dyslexia but finally he was saved. Interestingly the private company Lindamood Bell’s training credited with making it possible for him to read is not one of several private companies that qualify as IDA certified reading specialists. In fact they report that many of their clients have previously been failed by a certified company. The certified companies all use some version of the 1930’s Orton-Gillingham method whose phonics centered practice IDA calls “structured literacy.”
An important psychological motivator for parents of children struggling with learning to read is the repeated claim that dyslexia is a brain centered condition often associated with giftedness. Statements similar to the following extract from a written comment are common.
“This is a disability worth our investment of time It is the disability of Speilberg [sic], Einstein, and Steve Jobs . . . Honor us and embrace us. We are continually the great minds of every generation. We are the ‘game changers.’”
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